Potts and Pans at Home | Kids Out and About Rochester

Potts and Pans at Home

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Rochester , NY , 14627 43° 7' 54.6924" N, 77° 37' 26.1516" W
Contact name: 
Aron Reina
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This group is designed by parents of medically fragile children to provide council and support to parents of other medically fragile children - with a focus of tube related and/or nutritional needs.

POTTs and PANS at HOMEParents of Tots with TubesAndParents Assisting with Nutritional Services-Helping Our Medically ExceptionalTaking the Acronym image, you might imagine full take-out or dine-in services for months, followed by months of only preparing and eating meals in your own home. You'll squabble over who washes and who dries, but in the end, you'll realize the work needs to be done, and that it's for the best.Being home with your medically fragile child is very similar. For some amount of time you've had ample nursing support, but now is your opportunity to provide care for your child in your own home. Sure, it's challenging, but it can be rewarding as well.This group is designed by parents of medically fragile children to provide council, support and resources, to parents of other medically fragile children. Whether it's adapting to life at home, communication with your providers, or wondering if you are alone in your "crazy thoughts", we've been there. And, now we're here. Some day you will be too!In the meantime, leave us a note, drop a message, or let us know you're available to assist!

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